Not relieve pain. Note to future self.
Post-stroke experiences, thoughts, findings, and medical ailments that come and go.
Sunday, April 2, 2017
Wednesday, March 29, 2017
Nerve pain came back
Kinda all of a sudden, the nerve pain down my right arm and triceps came back. Not as bad as when I first had it but close. Maybe pain in month 3 or so. Had been having mild dull pain in hand and arm, more like overworked soreness so didn't think much about it. Was feeling a little crummy on Sunday but still went to work Woodland. Towards the end of shift I started feeling bad. Had to lie down a few times. Was hoping to lie down after i got home but ended up making dinner and stayed up. Feeling a littler worser at night. Next day, drive to Redlands. Driving hurt. Had Sage drive home from Banning. Was hard to sleep and getting up hurt a lot. Working at computer at work brought on the same pain. Had just seen Chip on Thursday but got myself back in on Wednesday. He says there's some swelling. But I can't recall doing anything out of ordinary. Cracked a few things. Then he says he's going to put me on this list for an ultrasound. Good, maybe I can not get those MRIs Deborah wanted me to get. $1500 for 3 tests. That's a lot. So the appointment was made for tomorrow. Sounds like a Nerve Test instead of an ultrasound, but will test if I have nerve damage. Best thing, I think it won't cost me anything.
Saturday, February 11, 2017
Medicine switch: Metoprolol
A few months ago Deborah added a second dose of amlodipine, so second dose at night. Seemed to be bringing my BP down. Then I started to get weird tingling sensations on my tongue. Best described as an unhealed tongue after scalding with a hot beverage. Someone else had the same symptoms. Further research led to amlodipine being banned in the Netherlands. Also read that its something you don't want to be on long term.
Decided to go back to just the morning dose. Couple months pass but I still got the funky tongue intermittently. Kept hoping it would go away but it never really did though it wasn't as intense.
Told Deborah this who decided to take me off amlodipine and hydrochlorothiazide and try Metoprolol instead since we hadn't tried a beta blocker yet. This lowers both BP and heart rate. Since my heart rate is usually high, this might be a good switch. Just need to monitor and take daily readings. If heart rate drops below 60 or top BP goes below 100 then stop for a day and call her.
She also told me to consider taking a medical grade fish oil called MonoPure for cholesterol support, plus it also acts as an antiflammatory support for arthritis joint aches. 30 day supply costs $33 so will try mixing it up with the fish oil I still have to make it last a little longer.
Original lab results about 4 months ago showed signs of high cholesterol and insulin resistance so re-did some labs again. Cholesterol lower this time, roughly in the high normal. No signs of diabetes. Vit D still same but could be higher
Results of last labwork:
Cholesterol 199
HDL 52 (up from 42)
LDL 116 (down from 151, but goal is <70 for stroke patients)
A1C 5.4 (stable from 5.5)
Vit D 44 (no change from 43 last time)
So trying new med for one month. Some possible side effects were BP and heart rate dropping too low. Possible tiredness/fatigue for about 2 weeks till body adjusts. Beta blockers could increase chance of getting gout. Am on a ExtendedRelease capsule so important to take at same time daily. Will try 9:30am. Other side effects: swelling in hands, ankles, feet. Chest pain. Diarrhea. Mild dizziness or tiredness, lightheadedness, dizziness, itching or hives, swelling of face or hands, tingling in mouth or throat, chest tightness, trouble breathing. Cold in extremities, hands/fingers, feet.
I am kinda glad to be off the diuretic. Felt my mouth was always dry. Peed alot at times. I hope this new med works.
Monday, October 17, 2016
First trail "run" of the year
For the first time since my neck thing, i went out to the hub and got out of the trail with the dogs. Was for only 25 min but was really nice getting back out. I miss hitting the trails, just didnt realize how much. And how good it makes me feel. Tried jogging back, legs felt weak, form was way off, trying to keep head up. Neck didnt really hurt. Yay, recovery is working. Got tired super quick. Body in bad shape. But felt REALLY good. Few days later, had a day where for a few hours actually felt normal again. No pain and felt energetic. And this was during woodland. I think that mini jog was a turning point for a healthier yumi.
Friday, October 7, 2016
Wrong month
Was looking to change our lib's FB banner to something Oct, somewhere in my search in my mind I was certain it was Nov so found a Nov literacy banner. It was really cute so I showed it to Susan when it hit me, oh man, its not November, its October! It weird, cuz during that time, I truly believe it is fact until something triggers a realization that its not. Feels like I'm living in a false reality sometimes.
Tuesday, October 4, 2016
My beautiful broken brain
Saw a netflix documentary about a 34 yr old girl who had a brain hemmorage stroke. Her main deficit was how it affected her language. Not being able recall what something was called. And re-learning how read and write. Some of the videos she takes of herself, she is spacey. I find myself in that state often, especially at home. But in a strange way I am calm and at peace when I am like this. Sometimes thoughts come in and out, sometimes I just zone out and just look at things. I think I go through this more whenI am tired. The main girls says something about how theres an obsession with recording things as your memory declines. So true. There are times I don't think about my stroke, more because other things are there, like my neck thing or just stressed about a bunch of things. Its been on my mind again lately, and I think about how that has changed me. And how I feel weaker, and older. And I wonder if David even is aware of these things, and understands this is the new me or rather just thinks that I am more of an annoyance and a more difficult person to be around.
Monday, March 21, 2016
Cervical Kyphosis
Interesting side note..." The lack of cervical spine curvature causes tension on the spinal cord and carotid arteries as they ascend into the brain to feed it oxygen and nutrients. This can cause dizziness, headaches, nausea, fatigue, tinnitus, pain, nervousness, insomnia, high blood pressure, and confusion, just to name a few. " I wonder if my blood pressure will retun to normal when my neck is fixed...